This last month has been one of the most stressful times in our lives. Managing my sons care is enough without now having to shop for a new job. Stressful…and I use that term loosely.
Where do I start?
Since Carter’s micro array came back normal, we have pursued whole exome sequencing. We got extremely lucky that insurance is picking up the entire cost. Thank you to the heavens.
That blood test is actually happening in a few hours. I should probably sleep, but I ran out of sheep and I’m starting on numbers. Crossing all of my appendages that we get a hit. It would be mighty miraculous.
Carter also had a scope surgery done last Friday. Everything was normal so we have started him on elavil for abdominal migraines, hoping this stops or lessens his vomiting. Poor thing has been vomiting every 2-4 minutes his whole short life. I can’t watch it anymore and am pushing until it stops.
Positive moment of the day: my dude focused on me today. He heard me, he responded, he laughed at my face. It was the best feeling I’ve had in a very long time. His inchstones make you forget there is this whole other world of bills and adulting. It’s just us in that moment. Nothing else exists.